Patient groups representing the interests of people living with diseases or disability provide education and support on how to manage their condition and campaign for change around health issues driven by patients' needs.  EuropaBio is creating a network where patients and industry can work together to meet the needs of patients throughout Europe.

EuropaBio's Patient's Charter.

It's my life. A New Revolution in Patient Power.
 

This book describes a new revolution, the patient revolution. Simon Rozendaal interviewed twelve patients with rare hereditary diseases from all over the world who are getting involved in the decision making about their medicines, treatments and bodies.

Click here for the order form.

Discover how healthcare biotechnology is saving, helping patients and serving society.

Useful Links

EPPOSI - European Platform for Patients' Organisations, Science and Industry
An EU patient-led partnership working together on healthcare policies for the treatment and prevention of serious diseases. EPPOSI was founded in 1994, on the initiative of patient organisations, for the exchange of information and the discussion of policies for human healthcare in the EU.

European Patients Forum
EPF is the umbrella group of pan-European patient groups active in the field of European public health and health advocacy.

IAPO - International Alliance of Patients organisations
IAPO is a unique global alliance representing patients of all nationalities across all disease areas and promoting patient-centred healthcare around the world.

EURORDIS - European Organisation for rare diseases
The European Organisation for Rare Diseases, EURORDIS, is a patient-driven alliance of patient organisations and individuals active in the field of rare diseases.

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