The Revision of the Orphan Medicines Regulation Is an Opportunity. Will Europe Seize it?


EuropaBio Statement on Rare Disease Day


Treatment Without Borders: The EU Case for Equitable Patient Access to Advanced Therapies


EuropaBio response to the European Commission Public Consultation on the Regulations for Orphan Medicinal Products and Paediatrics

EuropaBio has responded to the European Commission’s public consultation on the Orphan Medicinal Products (OMPs) and Paediatrics Regulations.

Rare Disease Week 2021 – Interview with Dr. Ravi Rao, Head of Research & Development, Chief Medical Officer at Sobi

Read EuropaBios interview with Dr. Ravi Rao, Head of Research & Development, Chief Medical Officer at Sobi, on the occasion of Rare Disease Week 2021.

EuropaBio and Alexion: RARE Conversations (Take Two) Keeping Rare Disease Patients In The Centre Of Discussion

On February 4th, Alexion continued its RareConversations event series in cooperation with EuropaBio.

EuropaBio Response to Public Consultation on the Evaluation of Patient Rights in Cross-Border Healthcare

EuropaBio sees the Directive on cross-border healthcare as an important instrument to ensure patient access to the best available care. The Directive is particularly relevant for advanced therapies and medicines for rare diseases.

ACCELERATE FAIR Initiative Letter of Support

We do appreciate the efforts led by the FAIR Initiative and hope to continue to partner with ACCELERATE to speed up the delivery of innovative therapies to children and adolescents.

Primary Immunodeficiencies Week – Interview Johan Prevot (IPOPI)

On the occasion of World PI Week we interviewed Johan Prevot, Executive Director of the International Patient Organisation for Primary Immunodeficiencies (IPOPI).

Strike Rare Diseases at the Root!

Read our newest blog on the occasion of Rare Disease Day on the 29th of February.