11/11/2022

The Revision of the Orphan Medicines Regulation Is an Opportunity. Will Europe Seize it?

28/02/2022

EuropaBio Statement on Rare Disease Day

08/09/2021

Treatment Without Borders: The EU Case for Equitable Patient Access to Advanced Therapies

02/08/2021

EuropaBio response to the European Commission Public Consultation on the Regulations for Orphan Medicinal Products and Paediatrics

EuropaBio has responded to the European Commission’s public consultation on the Orphan Medicinal Products (OMPs) and Paediatrics Regulations.
01/03/2021

Rare Disease Week 2021 – Interview with Dr. Ravi Rao, Head of Research & Development, Chief Medical Officer at Sobi

Read EuropaBios interview with Dr. Ravi Rao, Head of Research & Development, Chief Medical Officer at Sobi, on the occasion of Rare Disease Week 2021.
12/02/2021

EuropaBio and Alexion: RARE Conversations (Take Two) Keeping Rare Disease Patients In The Centre Of Discussion

On February 4th, Alexion continued its RareConversations event series in cooperation with EuropaBio.
12/02/2021

EuropaBio Response to Public Consultation on the Evaluation of Patient Rights in Cross-Border Healthcare

EuropaBio sees the Directive on cross-border healthcare as an important instrument to ensure patient access to the best available care. The Directive is particularly relevant for advanced therapies and medicines for rare diseases.
19/06/2020

ACCELERATE FAIR Initiative Letter of Support

We do appreciate the efforts led by the FAIR Initiative and hope to continue to partner with ACCELERATE to speed up the delivery of innovative therapies to children and adolescents.
28/04/2020

Primary Immunodeficiencies Week – Interview Johan Prevot (IPOPI)

On the occasion of World PI Week we interviewed Johan Prevot, Executive Director of the International Patient Organisation for Primary Immunodeficiencies (IPOPI).
29/02/2020

Strike Rare Diseases at the Root!

Read our newest blog on the occasion of Rare Disease Day on the 29th of February.