BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//Europabio - ECPv6.17.2//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:Europabio
X-ORIGINAL-URL:https://www.europabio.org
X-WR-CALDESC:Events for Europabio
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:Europe/Brussels
BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20200329T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20201025T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20210328T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20211031T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20220327T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20221030T010000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=Europe/Brussels:20211109T140000
DTEND;TZID=Europe/Brussels:20211109T180000
DTSTAMP:20211102T154338Z
CREATED:20211012T143142Z
LAST-MODIFIED:20211102T154338Z
UID:3283-1636466400-1636480800@www.europabio.org
SUMMARY:Rare Conversations Conference | European Rare Disease Ecosystem: A Collaborative Path Forward
DESCRIPTION:Join the inaugural Rare Conversations Conference aimed at facilitating essential discussion on the future of the rare disease and OMP ecosystem involving leading experts.The event will bring together thought leaders across regulators\, payers\, patient organizations\, research\, academia\, EU institutions\, industry and investors to develop inspiring ideas to advance the future of rare diseases. In four sessions\, speakers will cover the entire rare disease and orphan drug value chain from research through to access.Be part of this multifaceted and holistic approach to improving the rare disease ecosystem for the next decade and beyond in the EU through true multi-stakeholder exchange.The event is organized by Alexion in cooperation with the European rare disease patient organisation EURORDIS\, the European Joint Programme on Rare Diseases EJP RD\, the body for small to medium-sized innovative pharmaceutical\, biotechnology and medical technology companies EUCOPE\, and the association of the biotech industry EuropaBio.Block your calendar for 9th November from 14.00 – 18.00 CET. More information and the registration link will be shared with you shortly. \n\n\n\n\n\n\n\nAbout “Rare Conversations”Rare Conversations is an event series organized by Alexion to educate on rare diseases and facilitate multi-stakeholder exchange\, tackling timely topics of interest such as the revision of the OMP Regulation. Rare Conversations aims to unite and engage the rare disease community\, including key stakeholders in Brussels and EU Member States. Since its inception in December 2020\, four Rare Conversations have taken place\, each in cooperation with a different partner and focused on specific topics\, such as COVID and rare diseases\, the specificities of research in rare disease\, and EU and national value assessment for orphan drugs. People with rare diseases always stay at the centre of our activities and are part of every event.
URL:https://www.europabio.org/event/rare-conversations-conference-european-rare-disease-ecosystem-a-collaborative-path-forward/
CATEGORIES:Healthcare Biotech
ATTACH;FMTTYPE=image/png:https://www.europabio.org/wp-content/uploads/2021/10/Rare-Conversations.png
END:VEVENT
END:VCALENDAR