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SUMMARY:Nordic Rare Disease Roadmap Launch at the European Parliament
DESCRIPTION:Join us at the European Parliament on Tuesday 1 July\, from 15:00 to 17:00. Members of the European Parliament Stine Bosse (Renew Europe\, Denmark) and Maria Guzenina (Socialists and Democrats\, Finland) are hosting the event\, which coincides with Denmark assuming the Presidency of the Council of the European Union. This European Parliament event will bring together key stakeholders to mark an important step forward in our shared work to drive action for the more than 1 million people living with rare diseases in the Nordics and more than 30 million people living with rare diseases in Europe!  \n\n\n\nOur Director General Dr Claire Skentelbery will be speaking on the panel Rare diseases in the EU agenda: A call for a collective response. \n\n\n\nThis event is supported by the Nordic Rare Disease group – namely EURORDIS\, SBONN\, Sjældne Diagnoser\, Novo Nordisk\, Takeda\, Alexion\, Sobi\, UCB\, EFPIA\, EuropaBio\, and EUCOPE. \n\n\n\n\nRegister Here
URL:https://www.europabio.org/event/nordic-rare-disease-roadmap-launch-at-the-european-parliament/
CATEGORIES:External,Healthcare Biotech
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