06/04/2022

Rare Conversations: Game changing opportunities for the R&D community to address existing challenges in rare diseases

Join the inaugural episode of the new Rare Conversations event series in 2022, aimed at powering the next decade of rare disease innovation in Europe. The […]
28/02/2022

EuropaBio Statement on Rare Disease Day

19/10/2021

EuropaBio Patient Bio-Forum: challenges and future potential of European Reference Networks

07/09/2021

Treatment without borders: the EU case for equitable patient access to advanced therapies

The EU Pharmaceutical Strategy is looking to improve patients’ access to therapies for challenging and rare conditions. The EU legislation on cross-border healthcare is an important […]
02/08/2021

EuropaBio response to the European Commission Public Consultation on the Regulations for Orphan Medicinal Products and Paediatrics

EuropaBio has responded to the European Commission’s public consultation on the Orphan Medicinal Products (OMPs) and Paediatrics Regulations.
26/07/2021

EuropaBio response to the European Commission Public Consultation on the Regulation for Orphan Medicinal Products and Paediatrics: the value brought by the technology to patients and society should be well recognised

01/03/2021

Rare Disease Week 2021 – Interview with Dr. Ravi Rao, Head of Research & Development, Chief Medical Officer at Sobi

Read EuropaBios interview with Dr. Ravi Rao, Head of Research & Development, Chief Medical Officer at Sobi, on the occasion of Rare Disease Week 2021.
01/03/2021

1st International Conference on Rare Diseases

1st International Conference on Rare Diseases Different infrastructures and organisational arrangements are required in each country to address the healthcare needs of its rare disease population […]
12/02/2021

EuropaBio and Alexion: RARE Conversations (Take Two) Keeping Rare Disease Patients In The Centre Of Discussion

On February 4th, Alexion continued its RareConversations event series in cooperation with EuropaBio.
28/01/2021

European Biotech Associations Letter to the European Commission regarding the ongoing evaluation of the Orphan Medicinal Products Regulation

Read the European Biotech Associations Letter to the European Commission regarding the ongoing evaluation of the Orphan Medicinal Products Regulation.
20/01/2021

Revision of the EU legislation on medicines for children and rare diseases

Read our submission to the European Commission’s Inception Impact Assessment titled “Revision of the EU legislation on medicines for children and rare diseases“.
13/08/2020

Statement in response to the publication of the European Commission’s evaluation of the Orphan and Paediatric Regulations

Read our Statement in response to the publication of the European Commission’s evaluation of the Orphan and Paediatric Regulations.
29/02/2020

Strike Rare Diseases at the Root!

Read our newest blog on the occasion of Rare Disease Day on the 29th of February.
Become a member