17/01/2023
Rare Disease Day takes place on February 28th across the globe to raise awareness among policymakers and the public about rare diseases and their impact on patient's lives and their families...
15/03/2022
Join the inaugural episode of the new Rare Conversations event series in 2022, aimed at powering the next decade of rare disease innovation in Europe. The […]
19/10/2021
02/08/2021
EuropaBio has responded to the European Commission’s public consultation on the Orphan Medicinal Products (OMPs) and Paediatrics Regulations.
26/07/2021
15/07/2021
The EU Pharmaceutical Strategy is looking to improve patients’ access to therapies for challenging and rare conditions. The EU legislation on cross-border healthcare is an important […]
01/03/2021
Read EuropaBios interview with Dr. Ravi Rao, Head of Research & Development, Chief Medical Officer at Sobi, on the occasion of Rare Disease Week 2021.
12/02/2021
On February 4th, Alexion continued its RareConversations event series in cooperation with EuropaBio.
03/02/2021
1st International Conference on Rare Diseases Different infrastructures and organisational arrangements are required in each country to address the healthcare needs of its rare disease population […]
28/01/2021
Read the European Biotech Associations Letter to the European Commission regarding the ongoing evaluation of the Orphan Medicinal Products Regulation.
20/01/2021
Read our submission to the European Commission’s Inception Impact Assessment titled “Revision of the EU legislation on medicines for children and rare diseases“.
13/08/2020
Read our Statement in response to the publication of the European Commission’s evaluation of the Orphan and Paediatric Regulations.
29/02/2020
Read our newest blog on the occasion of Rare Disease Day on the 29th of February.