Europe Rare Disease Summit 2024

How to improve and learn about Government Plans, Access & Financing, Clinical Research and Innovation, Artificial Intelligence and Data, and Social & Patient.

Join our very own Healthcare Policy Senior Manager, Adrien Samson in Madrid where he will be speaking in the panel “Innovation, Funding and Access to Orphan Drugs: Challenges and Opportunities” between 12:15 and 13:00.

We are thrilled to announce the eagerly awaited second edition of the Europe Rare Disease Summit, set to take place in February. Joining forces from all corners of Europe, this prestigious event brings together leading researchers, healthcare professionals, patient advocates, policymakers, industry experts, and rare disease patients and families.

The summit emphasizes the power of collaboration and solidarity in facing rare diseases. Together, we can accelerate research, enhance patient care, and improve outcomes, offering a brighter future for those affected by rare diseases.

Key Objectives:

Empowering Patients: Putting patients at the heart of our efforts, we strive to enhance their access to quality care and support, while advocating for their rights and unique challenges.

Advancing Research: Renowned scientists will present groundbreaking discoveries, fostering cross-disciplinary collaboration to propel rare disease research forward.

Building Collaborative Networks: A platform for stakeholders to connect, exchange ideas, and form strategic partnerships, bridging gaps in research, treatment, and support.

Influencing Policy: By engaging policymakers, we seek to drive positive changes and better support the rare disease community.

Engaging Program Highlights: Expect a dynamic lineup of keynote speeches, interactive workshops, panel discussions and networking opportunities. Share experiences, learn from experts, and inspire change.

Location and Dates: Prepare to be inspired in the vibrant setting of Madrid on February 14th.

Who will Attend:

Rare Disease Advocates
Researchers and Scientists
Healthcare Professionals
Industry Leaders
Policymakers and Government Representatives
Pharmaceutical and Biotech Companies
Investors and Venture Capitalists
Academics and Students