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Nordic Rare Disease Roadmap Launch at the European Parliament

Name: Nordic Rare Disease Roadmap Launch at the European Parliament
Start: 2025-07-01T15:00:00+02:00
End: 2025-07-01T17:00:00+02:00

1 July @ 3:00 pm – 5:00 pm CEST

Join us at the European Parliament on Tuesday 1 July, from 15:00 to 17:00. Members of the European Parliament Stine Bosse (Renew Europe, Denmark) and Maria Guzenina (Socialists and Democrats, Finland) are hosting the event, which coincides with Denmark assuming the Presidency of the Council of the European Union. This European Parliament event will bring together key stakeholders to mark an important step forward in our shared work to drive action for the more than 1 million people living with rare diseases in the Nordics and more than 30 million people living with rare diseases in Europe!

Our Director General Dr Claire Skentelbery will be speaking on the panel Rare diseases in the EU agenda: A call for a collective response.

This event is supported by the Nordic Rare Disease group – namely EURORDIS, SBONN, Sjældne Diagnoser, Novo Nordisk, Takeda, Alexion, Sobi, UCB, EFPIA, EuropaBio, and EUCOPE.

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Algal Omega 3

Algal Omega-3 is an innovative feed product for aquaculture. It reduces the impact on climate change by 30-40% compared to fish oil and saves 60 tons of wild fish for every ton of Algal Omega-3 used.

Cheese

Cheese is a vegetarian product thanks to biotechnology. Biotechnology is also essential to produce lactose- or cholesterol-free cheese, as well as alternative proteins.

Clothes

Clothes made from alternative fibres produced by microorganisms can be 8x stronger than steel, 100% recyclable, biodegradable and replace fossil-fuel based or resource-intensive textiles.

Vitamin B2

The biomanufacturing of Vitamin B2 led to the reduction of 75% of fossil raw materials and 50% operating costs, compared to the chemical process. Vitamin B2 is used in the food, feed or healthcare sectors.

Detergents

Enzymes and biosurfactancts are alternative ingredients that improve the performance of detergents, while leading to water and energy savings and reductions in CO2 emissions and water toxicity.

Insulin

Insulin is one of the most widely known biopharmaceutical. Biotechnology revolutionised its manufacturing process and led to the development of new types of insulin through r-DNA technology.