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Nordic Rare Disease Summit 2025

16 September @ 8:00 am 17 September @ 8:00 pm Europe/Copenhagen

The scene has already been set, the roadmap for change is in our hands.

Taking place at the heart of Copenhagen on 16 & 17 September, alongside the Danish Presidency of the European Union, the 2025 Nordic Rare Disease Summit will gather the leading experts within academia and healthcare professionals, patients, decision-makers and industry to discuss solutions; with the joint aspiration of improving the quality of life for people living with rare diseases.

Building on prior summits in 2021 and 2023, the 2025 summit ‘pushing boundaries for rare’ will centre patient empowerment as a key theme.

The expertise of people living with a rare disease must be acknowledged as a resource from the level of individual patients to that of the community, and as a foundation for policymaking in the Nordics and the European Union. Together we can do more.