Rare Conversations Conference | European Rare Disease Ecosystem: A Collaborative Path Forward

Join the inaugural Rare Conversations Conference aimed at facilitating essential discussion on the future of the rare disease and OMP ecosystem involving leading experts.

The event will bring together thought leaders across regulators, payers, patient organizations, research, academia, EU institutions, industry and investors to develop inspiring ideas to advance the future of rare diseases. In four sessions, speakers will cover the entire rare disease and orphan drug value chain from research through to access.

Be part of this multifaceted and holistic approach to improving the rare disease ecosystem for the next decade and beyond in the EU through true multi-stakeholder exchange.

The event is organized by Alexion in cooperation with the European rare disease patient organisation EURORDIS, the European Joint Programme on Rare Diseases EJP RD, the body for small to medium-sized innovative pharmaceutical, biotechnology and medical technology companies EUCOPE, and the association of the biotech industry EuropaBio.

Block your calendar for 9^th November from 14.00 – 18.00 CET. More information and the registration link will be shared with you shortly.

About “Rare Conversations”
Rare Conversations is an event series organized by Alexion to educate on rare diseases and facilitate multi-stakeholder exchange, tackling timely topics of interest such as the revision of the OMP Regulation. Rare Conversations aims to unite and engage the rare disease community, including key stakeholders in Brussels and EU Member States. Since its inception in December 2020, four Rare Conversations have taken place, each in cooperation with a different partner and focused on specific topics, such as COVID and rare diseases, the specificities of research in rare disease, and EU and national value assessment for orphan drugs. People with rare diseases always stay at the centre of our activities and are part of every event.